fitmommy

Shannon's health and fitness blog

For Elizabeth

In October, my dear friends, Jeff and Reamy Newman will be hosting the Pink and Black Fundraiser for Elizabeth Lobato.

A month before Elizabeth was born, her parents, Mary and Terry, learned heartbreaking news from their obstetrician: An ultrasound had revealed that their baby was seriously underdeveloped. Her chances of living past 10 months were slim to none. “It was devastating,” Mary recalled. “All we could ask was ‘why?’”

Two doctors and a pediatrician assisted with Elizabeth’s birth in June 1998. Her legs, ribs, collar bones and right arm were broken.Elizabeth’s condition was diagnosed as typeIII Osteogenesis Imperfecta, known as brittle bone disease. Right away, she was placed on a drug regimen to manage pain and prevent seizures. Mary and Terry began to search for effective treatment options. This search led them to Dr. Edwin Horwitz, where he was treating the symptoms of brittle bone disease with bone marrow transplants. At the age of six months old, it was the first glimpse of hope Mary and Terry found for their daughter.

Days after her first birthday,Elizabeth received a bone marrow transplant and started follow-up therapy. In 2004, she underwent a stem cell infusion. Since then,Elizabeth has made steady progress. Elizabeth is still undergoing treatment, receiving stem cell infusions from her dad every four months and follow ups from her bone marrow transplant.

Over the past few years, Elizabeth has gradually moved away from using her wheelchair and walker. She has not used her walker since Christmas 2007. Additionally, she’s also grown in height, which is unusual for someone with typeIIIOsteogenesis Imperfecta. However recently,Elizabeth has lost her ability to walk and her only wish is to simply walk again.

Elizabeth is an amazing girl; she has become quite the teenager. She loves perfume and the colors pink and black. Her favorite artist is Taylor Swift, she loves to sing, and her favorite movies are the Harry Potter series. One day would like to become a pediatrician.

My 10 year old daughter makes headbands and jewelry, and was asked if she would be willing to sell these at the fundraiser and donate the proceeds to finding a cure for Lizzie’s disease.  Always one to lend a helping hand, my daughter jumped at the chance to help this little girl and other children like her.

I. too, wanted to help out.  So, for the month of October, for every person who signs up for the 28 Days to Health detoxification program, I will donate 50% of the program fee to Elizabeth’s cause.  For those who sign up by September 30, the program fee is half off, so I will donate 100% of their program fee. 

For those of you who have already gone through the program or aren’t quite ready to do so, but still would like to help out, you may go to elizabethlobato.com to make a donation.

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September 29, 2011 - Posted by | Children, Health | , , , ,

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